Title
Transcript: Dr. Mary Ciccarelli
Subject
Medical
Transition
Description
“It's an interesting question to ask, how I got interested in the field of disability services,” states Dr. Mary Ciccarelli. When Dr. Ciccarelli began her training in the late ‘70s, early ‘80s, there was little specific attention paid to disabilities. As an internist and pediatrician, Dr. Ciccarelli found it harder to accommodate all her patients. Other pediatricians, who took care of youth with special health care needs, were transitioning patients to her practice. She decided she needed to find a better way of doing things. As a result, Dr. Ciccarelli collaborated with IPIN, Indiana Parent Information Network, on a pilot project funded by Indiana Maternal Child Health to develop transition services for youth with disabilities.
Dr. Ciccarelli discusses the challenges families face when moving from pediatric to adult care. It can be frightening for parents to let go and support their children to become more autonomous in making health care decisions. As a person moves from pediatric care to adult health care services, there may be a need to redefine the individual’s care team. In addition, billing codes and language in mental health services differs between pediatrics and the adult service system.
“How do we improve healthy opportunities for persons with disabilities in our state?” Dr. Ciccarelli talks about her experience working with Special Olympics of Indiana athletes. For the past few years, she has assisted with providing health-screenings for the athletes at the State Games. Dr. Ciccarelli discusses the need to educate people with disabilities and caregivers on how to live healthier lives.
To better serve patients with disabilities, Dr. Ciccarelli describes the training IU medical students receive. “I think there's better methods today than there were in the late '70's,” Today, the Indiana School of Medicine curriculum includes training on the culture of disability, rights of people with disabilities, and teaming with other professionals. Dr. Ciccarelli says, “I think we'll see evolution and improvement. I hope, in the readiness of our graduates in caring for people with disabilities.”
Dr. Ciccarelli is a Professor of Clinical Medicine and Clinical Pediatrics at Indiana University School of Medicine. She is director of the Center for Youth and Adults with Conditions of Childhood (CYACC), which provides resources to youth ages 11 to 22 with special health care needs. She was interviewed in 2018.
Creator
Indiana Disability History Project
Publisher
Center for Health Equity at the Indiana Institute on Disability and Community and Indiana Governor's Council for People with Disabilities
Contributor
Dr. Mary Ciccarelli - interviewee
Jennie Todd - interviewer
Peggy Holtz- videographer/editor
Rights
Copyright © 2019 The Trustees of Indiana University
Relation
119-mi
119-mi-01
Access Rights
Open to all users
Bibliographic Citation
Dr. Mary Ciccarelli, May 10, 2018, interview 119-mi, transcript, Indiana Disability History Project, Center for Health Equity, Indiana Institute on Disability and Community, Bloomington, IN, http://indianadisabilityhistory.org
Temporal Coverage
1970s - 2018